Opportunity Information: Apply for HRSA 20 049
The National Genetics Education and Family Support Program (NGEFSP) is a federal funding opportunity from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA). It is designed to expand access to genetic services by helping individuals and families who have, or may be at risk for, genetic conditions become more meaningfully connected to the genetic health care system. The core idea is that better access is not only about having clinics and specialists available, but also about making sure families have understandable information, practical support, and a real voice in how genetic care is delivered.
The program’s approach centers on education, empowerment, leadership development, and systems support. Funded activities are expected to provide culturally and linguistically appropriate genetics education and resources so that families from different backgrounds can understand genetic conditions and the services available to them. In addition to information, the program emphasizes direct support for individuals and families so they can participate as equal partners in their health care, which can include helping them navigate services, communicate with providers, and understand options related to testing, counseling, and ongoing management.
A major component is training and developing “family leaders,” meaning individuals and family members affected by genetic conditions who can take on leadership roles within the genetic health care delivery system and within the Regional Genetics Networks (RGNs). These leaders are meant to bring lived experience into planning and decision-making, improving how programs are designed and how care is delivered. The award also requires providing technical assistance to the RGNs on effective ways to integrate family leaders into their work and to improve outreach and engagement with underserved populations, helping ensure that communities facing barriers to care are not left out.
Administratively, this opportunity is listed as HRSA-20-049 and uses a cooperative agreement funding instrument, which typically means HRSA expects substantial involvement in shaping or overseeing key aspects of the work compared to a standard grant. The activity category is health (CFDA 93.110). Eligible applicants are broad and include various levels of government (state, county, city/township, special districts), independent school districts, public and private institutions of higher education, certain tribal organizations (other than federally recognized tribal governments), and nonprofit 501(c)(3) organizations (excluding higher education institutions), along with other entities as described in the eligibility details. The notice was created October 16, 2019, with an original application deadline of January 14, 2020. The posting indicates one expected award; the award ceiling is listed as 0, which usually signals that the maximum amount was not specified in that particular field of the notice rather than implying no funding.
Overall, NGEFSP is aimed at strengthening family engagement as a practical strategy for improving genetics service access nationwide: improving education in ways families can actually use, building support structures that make care navigable, developing family leadership to influence systems, and helping regional networks adopt best practices for including those leaders while reaching populations that are historically underserved.Apply for HRSA 20 049
- The Department of Health and Human Services, Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "National Genetics Education and Family Support Program" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110.
- This funding opportunity was created on Oct 16, 2019.
- Applicants must submit their applications by Jan 14, 2020. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Public and State controlled institutions of higher education, Native American tribal organizations (other than Federally recognized tribal governments), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Private institutions of higher education, Others (see text field entitled Additional Information on Eligibility for clarification).
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Frequently Asked Questions (FAQs)
What is the National Genetics Education and Family Support Program (NGEFSP)?
NGEFSP is a federal funding opportunity from the U.S. Department of Health and Human Services (HHS), administered by the Health Resources and Services Administration (HRSA). Its purpose is to expand access to genetic services by helping individuals and families who have, or may be at risk for, genetic conditions connect more meaningfully to the genetic health care system.
What problem is this program trying to solve?
The program is focused on improving access to genetic services in a practical, real-world way. It recognizes that access is not only about having clinics and specialists available, but also about ensuring families have understandable information, practical support, and a meaningful voice in how genetic care is delivered.
What are the main goals or priorities of NGEFSP?
Based on the opportunity description, the approach centers on education, empowerment, leadership development, and systems support. Activities are expected to improve family-facing education and resources, strengthen direct family support to help people navigate genetic care, and build family leadership that can influence how genetics services are planned and delivered.
What kinds of activities does NGEFSP expect to fund?
Funded activities are expected to include culturally and linguistically appropriate genetics education and resources, direct support to help individuals and families participate as equal partners in care, leadership development for “family leaders,” and technical assistance to the Regional Genetics Networks (RGNs) on integrating family leaders and improving outreach to underserved populations.
What does “culturally and linguistically appropriate” mean in this program?
The notice indicates that education and resources should be designed so families from different backgrounds can understand genetic conditions and available services. This implies materials and support should be accessible and relevant across cultures and languages, rather than relying on one-size-fits-all information.
What does the program mean by “direct support” for individuals and families?
The program emphasizes hands-on support so individuals and families can participate as equal partners in their health care. Examples mentioned include helping people navigate services, communicate with providers, and understand options related to genetic testing, genetic counseling, and ongoing management.
What are “family leaders” in the context of NGEFSP?
Family leaders are individuals and family members affected by genetic conditions who are trained and developed to take on leadership roles within the genetic health care delivery system and within the Regional Genetics Networks (RGNs). Their lived experience is intended to inform planning and decision-making.
Why does the program focus on developing family leaders?
The program frames family leadership as a way to bring lived experience into how genetics services are designed and delivered. By strengthening family participation in planning and decision-making, the program aims to improve the relevance, effectiveness, and accessibility of genetic services.
What are the Regional Genetics Networks (RGNs), and how does this award relate to them?
The award requires providing technical assistance to the RGNs, particularly on effective ways to integrate family leaders into their work and to improve outreach and engagement with underserved populations. This positions the funded work as supportive of network-level systems improvement, not only direct education efforts.
What is meant by “technical assistance” to the RGNs?
Within the description provided, technical assistance refers to helping RGNs adopt effective approaches for integrating family leaders into their activities and improving how they reach and engage underserved populations. The emphasis is on practical support and best practices for inclusion and outreach.
What does “underserved populations” mean here?
The notice describes underserved populations as communities facing barriers to care and stresses that outreach and engagement should help ensure these communities are not left out. The specific barriers are not itemized in the provided text, but the intent is clear: improve inclusion where access gaps exist.
Which federal agency is offering and administering this opportunity?
This is an HHS opportunity administered by HRSA (Health Resources and Services Administration).
What is the opportunity number for this funding?
The opportunity is listed as HRSA-20-049.
What type of funding instrument is used?
The program uses a cooperative agreement funding instrument. The description notes that this typically means HRSA expects substantial involvement in shaping or overseeing key aspects of the work compared to a standard grant.
What is the activity category and CFDA number associated with this program?
The activity category is health, and the CFDA number listed is 93.110.
Who is eligible to apply for NGEFSP based on the provided information?
Eligibility is described as broad and includes various levels of government (state, county, city/township, special districts), independent school districts, public and private institutions of higher education, certain tribal organizations (other than federally recognized tribal governments), and nonprofit 501(c)(3) organizations (excluding higher education institutions), along with other entities as described in the eligibility details.
Are federally recognized tribal governments eligible under this notice?
The provided eligibility summary specifically references certain tribal organizations other than federally recognized tribal governments, indicating federally recognized tribal governments are not included in that referenced eligible category in the summary provided.
How many awards were expected?
The posting indicates one expected award.
What is the application deadline?
The original application deadline is listed as January 14, 2020.
When was the funding notice created?
The notice was created on October 16, 2019.
What is the award ceiling (maximum award amount)?
The award ceiling is listed as 0. The description notes that this usually signals the maximum amount was not specified in that particular field of the notice, rather than implying that no funding is available.
Does this program only fund clinical services?
The description emphasizes that improving access involves more than clinic availability. Funded activities are expected to include education, navigation/support, leadership development, and systems-level support through technical assistance and improved engagement practices.
What does success look like for projects funded under NGEFSP?
Based on the goals described, success would align with families having more understandable genetics information, stronger support for navigating services and communicating with providers, more meaningful family participation as partners in care, stronger family leadership in genetics systems and RGNs, and improved outreach/engagement with underserved populations.
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