Opportunity Information: Apply for HRSA 20 049
The National Genetics Education and Family Support Program (NGEFSP) is a federal funding opportunity from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA). It is designed to expand access to genetic services by helping individuals and families who have, or may be at risk for, genetic conditions become more meaningfully connected to the genetic health care system. The core idea is that better access is not only about having clinics and specialists available, but also about making sure families have understandable information, practical support, and a real voice in how genetic care is delivered.
The program’s approach centers on education, empowerment, leadership development, and systems support. Funded activities are expected to provide culturally and linguistically appropriate genetics education and resources so that families from different backgrounds can understand genetic conditions and the services available to them. In addition to information, the program emphasizes direct support for individuals and families so they can participate as equal partners in their health care, which can include helping them navigate services, communicate with providers, and understand options related to testing, counseling, and ongoing management.
A major component is training and developing “family leaders,” meaning individuals and family members affected by genetic conditions who can take on leadership roles within the genetic health care delivery system and within the Regional Genetics Networks (RGNs). These leaders are meant to bring lived experience into planning and decision-making, improving how programs are designed and how care is delivered. The award also requires providing technical assistance to the RGNs on effective ways to integrate family leaders into their work and to improve outreach and engagement with underserved populations, helping ensure that communities facing barriers to care are not left out.
Administratively, this opportunity is listed as HRSA-20-049 and uses a cooperative agreement funding instrument, which typically means HRSA expects substantial involvement in shaping or overseeing key aspects of the work compared to a standard grant. The activity category is health (CFDA 93.110). Eligible applicants are broad and include various levels of government (state, county, city/township, special districts), independent school districts, public and private institutions of higher education, certain tribal organizations (other than federally recognized tribal governments), and nonprofit 501(c)(3) organizations (excluding higher education institutions), along with other entities as described in the eligibility details. The notice was created October 16, 2019, with an original application deadline of January 14, 2020. The posting indicates one expected award; the award ceiling is listed as 0, which usually signals that the maximum amount was not specified in that particular field of the notice rather than implying no funding.
Overall, NGEFSP is aimed at strengthening family engagement as a practical strategy for improving genetics service access nationwide: improving education in ways families can actually use, building support structures that make care navigable, developing family leadership to influence systems, and helping regional networks adopt best practices for including those leaders while reaching populations that are historically underserved.Apply for HRSA 20 049
- The Department of Health and Human Services, Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "National Genetics Education and Family Support Program" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110.
- This funding opportunity was created on Oct 16, 2019.
- Applicants must submit their applications by Jan 14, 2020. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Public and State controlled institutions of higher education, Native American tribal organizations (other than Federally recognized tribal governments), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Private institutions of higher education, Others (see text field entitled Additional Information on Eligibility for clarification).
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